i too contacted Ivar and even visited him in Norway. Unfortunately, he refused to operated me on the basis that clinical trial does not engage new people any more.
Can you please, in response to this request, email to me a short email. I wanted to ask you for some information about the NY doctor – Dr. Larry Shemen – that you have made an operation with.
Best regards, Yaroslav
sorry, forgot to mention – my email is:
What a powerful story! Thank you for sharing!
How can I find a doctor near me that is willing to do a thyroid removal for Hashimotos? Diagnosed 12 years ago with worsening debilitating symptoms ever since
all my search for such a doctor ended up in the USA. I know of two doctors, whom i contacted, and who confirmed they would be able to do an operation on me.
In your thyroid journey have you run across anyone that has actually had a nuclear scan in an attempt to kill the thyroid gland itself? In the mid 90s I had the initial procedure, but bloood tests came back that I’d have to do a repeat performance. My surgeon retired and no one in the practice followed up on my results or treatment. Several years and several Drs (ob/gyn, internists) have stated my parathyroids are functioning and acting in place of my thyroid. Presently looking for a Dr in my area so I pray a new set of eyes will help guide my journey, surgery sounds like a viable option at this point. Thank you for sharing your story?
Dear Alanna –
This made me cry – I have been fighting Hashi’s for 15 years and the autoimmune flares are literally killing me. My BP is 190/100 and HR 150 when my antibodies spike. I have had 2 thyroid storms, even though clinically I am hypo. My TPO antibodies during this last flare spiked to 8000! My Doctor monitors me very closely, I am constantly having med levels changed to accommodate the flares. I have eliminated grains, dairy, soy. I take LDN, I monitor my iron, I have a cupboard full of supplements. Nothing stops the swings! I suffer 3-5 major flares a year and I cannot do it any longer. My thyroid rules my life – I am never allowed to get off this bungee cord from hell. You are truly the first person I have heard of that said removing your thyroid has actually helped! I have resisted surgery for 5 years but now you have given me hope that maybe a thyroidectomy is not the kiss of death most patients claim. I simply can’t go on like this anymore. If you know of any good surgeons in Utah, USA, please let me know!
I would like to know what meds you are you on. I too had a total thyroidectomy, I felt great the 1st 6 months after surgery but not I’m back to feeling the same and my doctor can’t seem to get my thyroid medication right.
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